Tuesday, April 24, 2012

Don't be shocked when you meet a grieving child

Some helpful advice in the Chicago Tribune on dealing with bereaved young folks. I know that I was met with that awful silence countless times as a teenager and young adult....

Don't be shocked when you meet a grieving child

Nara Schoenberg

There I'd be, a teenager more or less minding her own business at a school event or a social gathering, when a well-meaning adult would start quizzing me about where I was born, how many brothers and sisters I had, and what my father did.
"My dad was a doctor," I'd say. "He died."
"Oh, I'm so sorry. That's horrible," the adult would say, and then proceed to stare at me as the conversation ground to a halt.
I'd be thinking: "I'm 15. You're the adult here, you brought this up, and now I'm supposed to say something to make you feel better?"
The answer, of course, was yes, and I got pretty good at it, but I never stopped hating the way that conversation made me feel. When I finally found a close friend who had been through the same thing, we bonded instantly over the weirdness of an adult being shocked, just shocked, that some people actually die before old age. (It's awful, yes, but it happens quite a bit, and making bereaved kids feel like freaks of nature doesn't do anyone a whole lot of good.)
My friend and I joked that we should just burst into tears the next time someone pulled the awkward silence stunt. Or maybe we could circulate together at a social event. When someone was beating themselves up for reminding one of us that he or she had lost a parent, the other one could pipe up with, "My father's dead too!" (Cue the uncontrollable sobs, in stereo.)
OK, we were 19 and stupid, but our basic logic, I think, was sound. "You want awkward? We'll give you awkward!"
A lot has changed for the better since the 1970s and '80s, when I was dealing with these issues, including the rise of bereavement centers and age-appropriate support groups, a great step forward for grieving kids. But a new New York Life Foundation/National Alliance for Grieving Children survey of kids at bereavement programs across the U.S., billed as the first study of its kind, suggests that young people are still struggling with less-than-helpful reactions.
Among the study's findings: While kids identified strongly with key statements such as "The death of my loved one is the worst thing that ever happened to me" and "You never stop missing your loved one," when they were asked to choose just one statement that applied to them the most, the largest group of kids (32 percent), chose "People don't have to give me special treatment; I just want to be treated like everyone else."
That's the way I felt, and while the survey doesn't address the awkward silence issue directly, experts say it persists.
"I think it's the norm," said Joe Primo, associate executive director of Good Grief, a children's bereavement center in Morristown, N.J.
"As a society, we really struggle with talking about death. For most Americans, it's hard enough to have that conversation with an adult, and all of a sudden, you throw a kid into the mix, and I don't think adults have a clue where to begin."
Jill Hamilton, 49, of Palm Springs, Calif., noticed the awkward silence problem after her husband, Kelly, died last year. She's raising their children, Lauren, 11, and Brad, 14.
"It would be nice for the person to say, 'What kind of person was he?' or ask something about him, not just (lapse into) dead silence," Jill Hamilton says.
"Awkward silence!" Lauren interjects.
Experts have plenty of advice for what friends and family can do to help a bereaved child (listen, ask what he or she needs, don't tell the child to stop crying), but when it comes to the specific question of the awkward silence, they say there are no easy answers.
Each grieving person is different, says Andy McNiel, executive director of the National Alliance for Grieving Children, and some people complain about silences while others complain about intrusive questions.
"It's almost damned if you do, damned if you don't," McNiel says. "What do you say? I've been working with families for 20 years now and I still will go to funerals and sound like a bumbling idiot. The truth is, there's not always a really good thing to say."
Still, I do think it would help if people educated themselves a little about the topic, starting with the basics: You have every right to be unnerved when you learn a child has lost a parent, but you don't have the right to be shocked. According to a 2009 survey by New York Life with Comfort Zone Camp, 1 in 9 Americans have lost a parent before age 20; 1 in 7 have lost a parent or sibling.
If you can simply go into an introductory conversation with a child knowing that the death of a parent is a real possibility, you can probably spare yourself and others significant discomfort. You can avoid the question of parental occupation entirely, or if you choose to broach it and find out the parent in question is deceased, try a suggestion from Lauren's mother, Jill: Ask a question along the lines of, "What was (the deceased parent) like?"
"As a kid, you're proud of your parent and you love your parent and that gives you a way to talk about them that isn't tied to their death," Jill Hamilton says.
Lauren brightens immediately when she's asked what her dad was like: "He was a jolly man, like Santa Claus. He had a big tummy and a big beard, and he looked like Santa Claus." He even dressed up as Santa Claus one year, she says, and gave out presents to the kids at their church.
I was a cynical teen when I was mourning my dad, and Lauren is a gung-ho fifth-grader. But listening to her, I'm reminded that I, too, could prattle on merrily about my father at times, even with an adult I didn't know well.
I didn't have much to say about death or loss or a specific illness, and awkward silences were pretty much guaranteed when strangers veered off in that direction. But my dad? My funny, thoughtful, crazy-smart dad was my hero, and I could have talked about him all day long.
nschoenberg@tribune.com

Wednesday, February 22, 2012

"From Grieving to Healing" article in Oregonian

This was a touching article in the Oregonian on a couple who did a benefit for Grief Watch and the Dougy Center after their newborn son died. Everyone thinks that their grief is unique. It's not. Here's a link to the article, "From Grieving to Healing"

I sold a lot of jet mourning jewelry and jet beads over the weekend at the Winter Breitenbush Gathering of Radical Faeries. I also went to a 3 hour long grief healing ritual which was a really powerful experience for me. Looking forward to being back in the studio. Want to cut more colorful stones but also need to keep the genuine jet mourning beads flowing as a part of my spiritual practice.

Friday, January 27, 2012

Am I grieving right?

Was turned on to this article by a good friend of mine. It totally relates to yesterday's post about APA talking about redefining grief as a form of depression....

We pay a price when labeling grief as an illness.

Thursday, January 26, 2012

Grief Could Join List of Disorders

An article in yesterday's New York Times really gave me pause. It's about reclassifying grief, or ongoing grief, as a form of depression in the new version of Diagnostic and Statistical Manual of Mental Disorders. Having suffered from depression all my life, and having struggled with ongoing and complicated grief from multiple losses, I'm really conflicted about this. Read the whole article here....

Grief Could Join List of Disorders

I do know that I'm against prescribing medication, at least anti-depressants, for people dealing with grief. People need counseling. Someone to talk to. They don't need to line the pockets of big pharma just because their heart is extremely broken.

Monday, September 26, 2011

Fall, Brian's death, and back in black...



Hello Broken Hearts Club Band, it's been awhile.

Well, it's really Fall in Portlandia. It's a time of hard transitions, challenging anniversaries, layers of grief, emotional pain, increasing darkness, and challenging myself to be more open to the love and support of my community, as well as asking for that love and support. It's also a time of receiving all sorts of signs for me; signs of support from friends and support from Spirit. Some of those signs are pretty obvious. I made a pilgrimage to Ravenna Ravine park in Seattle and picked up litter to honor the Goddess. While doing so I found a silver ring that fits my pinky and says in Chinese characters on the front, "I Love You" and inscribed inside, it says the word "LOVE". Thanks for that Spirit.

I started this blog as sort of a record for myself, as a resource for myself, and as a way for me to process my own grief and broken, rebroken, healing heart. I realize now, even more than ever, that "this", the writing and sharing of this process, is a part of my process. What a web we weave. There are soooo many spiders in the garden this time of year. Every morning I walk through a web when I leave the stairs to my house. The veil is thin and the web is thick.

I'm going to the memorial for a beloved friend this weekend. He was an amazing man, loved, admired, and appreciated by thousands and the best barista on Capitol Hill. He died in a bike crash at age 51. I don't know why, but for some reason, having born witness and felt the social and cultural impact over the past 30 years from the premature deaths of 300,000+ gay men in this country from the plague, I feel especially challenged by the "normal" early, premature, tragic, unfortunate, deaths of other gay men I know. I want a "get out of grief" free card, or I want "frequent griever flyer miles" or something. I don't just feel my own grief when these tragic events happen, I feel the grief of the community. A community that already deals with such layers of "complicated grief," "unresolved grief," "anticipatory grief," "survivor guilt," and untold cases of undiagnosed, unrecognized PTSD. I don't even ever really try and talk about this with my heterosexual friends and if I talk about it with queers under 40 it feels like I have to make it a "teachable moment."

If you want to know more about my friend, the fabulous Brian Fairbrother, here is a link to his obituary in the Seattle Gay News. The picture above is from the early 90's when Ti and I were having a big "Chroma" party where everyone was supposed to dress up colorfully. Brian was always colorful, and loved being contrary, so he work black of course.

I'm off to the cutting wheels to spend an hour shaping some lingam shaped jet mourning pendants. That's a part of the process too. I guess living our lives in spite of the process is also part of the process.

Warm regards on this windy day, Leo Sunshine

Wednesday, August 3, 2011

Genuine Jet Broken Heart Tasbih Prayer Beads


This is the third set of prayers beads I've made. Stella has the first set and Wallowa has the second set. Prayer beads have been on my mind and heart a lot ever since I used Jamshed's altar tasbih to say 99 prayers for him as he lay dying last October. I'm making them with a lot of intention and it's been pretty challenging work. I use each set for awhile before I let them go...
Here's the link to the eBay listing for

DVH Real Jet Tasbih Prayer Beads Broken Heart Necklace

Wednesday, June 1, 2011

REGRETS OF THE DYING

A great post from Inspiration and Chai

It's about the regrets that the dying have by Bronnie Ware....

For many years I worked in palliative care. My patients were those who had gone home to die. Some incredibly special times were shared. I was with them for the last three to twelve weeks of their lives.

People grow a lot when they are faced with their own mortality. I learnt never to underestimate someone's capacity for growth. Some changes were phenomenal. Each experienced a variety of emotions, as expected, denial, fear, anger, remorse, more denial and eventually acceptance. Every single patient found their peace before they departed though, every one of them.

When questioned about any regrets they had or anything they would do differently, common themes surfaced again and again. Here are the most common five:

1. I wish I'd had the courage to live a life true to myself, not the life others expected of me.

This was the most common regret of all. When people realise that their life is almost over and look back clearly on it, it is easy to see how many dreams have gone unfulfilled. Most people had not honoured even a half of their dreams and had to die knowing that it was due to choices they had made, or not made.

It is very important to try and honour at least some of your dreams along the way. From the moment that you lose your health, it is too late. Health brings a freedom very few realise, until they no longer have it.

2. I wish I didn't work so hard.

This came from every male patient that I nursed. They missed their children's youth and their partner's companionship. Women also spoke of this regret. But as most were from an older generation, many of the female patients had not been breadwinners. All of the men I nursed deeply regretted spending so much of their lives on the treadmill of a work existence.

By simplifying your lifestyle and making conscious choices along the way, it is possible to not need the income that you think you do. And by creating more space in your life, you become happier and more open to new opportunities, ones more suited to your new lifestyle.

3. I wish I'd had the courage to express my feelings.

Many people suppressed their feelings in order to keep peace with others. As a result, they settled for a mediocre existence and never became who they were truly capable of becoming. Many developed illnesses relating to the bitterness and resentment they carried as a result.

We cannot control the reactions of others. However, although people may initially react when you change the way you are by speaking honestly, in the end it raises the relationship to a whole new and healthier level. Either that or it releases the unhealthy relationship from your life. Either way, you win.

4. I wish I had stayed in touch with my friends.

Often they would not truly realise the full benefits of old friends until their dying weeks and it was not always possible to track them down. Many had become so caught up in their own lives that they had let golden friendships slip by over the years. There were many deep regrets about not giving friendships the time and effort that they deserved. Everyone misses their friends when they are dying.

It is common for anyone in a busy lifestyle to let friendships slip. But when you are faced with your approaching death, the physical details of life fall away. People do want to get their financial affairs in order if possible. But it is not money or status that holds the true importance for them. They want to get things in order more for the benefit of those they love. Usually though, they are too ill and weary to ever manage this task. It is all comes down to love and relationships in the end. That is all that remains in the final weeks, love and relationships.

5. I wish that I had let myself be happier.

This is a surprisingly common one. Many did not realise until the end that happiness is a choice. They had stayed stuck in old patterns and habits. The so-called 'comfort' of familiarity overflowed into their emotions, as well as their physical lives. Fear of change had them pretending to others, and to their selves, that they were content. When deep within, they longed to laugh properly and have silliness in their life again.

When you are on your deathbed, what others think of you is a long way from your mind. How wonderful to be able to let go and smile again, long before you are dying.

Life is a choice. It is YOUR life. Choose consciously, choose wisely, choose honestly. Choose happiness.